Kenyan mom and Spinal Muscular Atrophy (SMA) advocate Ruth Wambui, known online as Ruth Wambs, has spoken openly about one of the most difficult choices a parent can face: the decision to cremate her late daughter, Neillah.
In a recent video, Ruth explained that she had known from the outset that she wanted to cremate her child.
“I knew from the beginning that I wanted to cremate my daughter,” she said, “but actually having to make that decision and go through with it was still one of the hardest things I have ever done.”
Despite the difficulty, she expressed relief and gratitude for the path she chose. The decision has brought her a measure of comfort, allowing her to feel that, in a way, she still has her daughter with her. Ruth described being able to cuddle her, kiss her, talk to her, take selfies with her and even dance with her. “It doesn’t make the pain of losing her any less,” she acknowledged, “but it has made this journey a little more bearable. I will carry her with me, always.”
Neillah, also known as Neillah Mirera was born on Valentine’s Day 2018. Diagnosed with Type 1 SMA (Spinal Muscular Atrophy) as a baby, she was initially given only months to live. Through her mother’s devoted care and medical support, she lived for eight years, defying early medical expectations. She passed away on 15 February 2026, just one day after celebrating her eighth birthday.
Grief is deeply personal. There is no single correct way to say goodbye, nor any prescribed length of time for mourning. Ruth’s choice reflects her own need for closeness and connection after loss. In sharing it so honestly, she offers a reminder that every parent is entitled to navigate farewell and remembrance in the manner that feels most right for them.
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